PAEDIATRIC ASTHMA CAREGIVER’S QUALITY OF LIFE QUESTIONNAIRE (PACQLQ)
The Paediatric Asthma Caregiver’s Quality of Life Questionnaire (PACQLQ) measures the problems that are most troublesome to the parents (primary caregivers) of children with asthma.
The PACQLQ was developed and validated using the same methodology as we have use for all our questionnaire. The primary caregivers of children (7-17 years) identified the activity limitation and emotional problems they experienced as a result of their child’s asthma. The highest scoring problems were included in the questionnaire. There are 13 questions in two domains (activity limitation and emotional function). Parents recall the impact that their child’s asthma has had during the previous week and score each questions on a 7-point scale. The validation study provided evidence of strong measurement properties and validity.
The problems experienced by the parents of younger children (< 7 years)may not be the same as those experienced by the parents of older children and adolescents. For example, by 7 years old, most children are at school and participating in activities without parental involvement and these children are often responsible for taking their own asthma medications; some may even be working! In contrast, children under 7 years may not understand their asthma and how to manage it (e.g. running until very tight) and parents worry that they may not detect deterioration in symptoms. The PACQLQ should only be used in the parents of children 7-17 years because it is unlikely to be accurate in assessing the impact of younger children’s asthma on their parents.
Juniper EF, Guyatt GH, Feeny DH, Ferrie PJ, Griffith LE, Townsend M. Measuring quality of life in the parents of children with asthma. Qual Life Res 1996; 5: 27 -34.
English for North America
OBTAINING THE PACQLQ
Paediatric Asthma Quality of Life Questionnaire (PAQLQ) - original
| Standardised Paediatric Asthma Quality of Life Questionnaire (PAQLQ(S))
| Mini Paediatric Asthma Quality of Life Questionnaire (MiniPAQLQ)
| Paediatric Asthma Caregiver’s Quality of Life Questionnaire (PACQLQ)